Google Health

[mood] I’m pissed off.[/mood]

In today’s Google blog post, Google VP, Adam Bosworth touches on something I have been fighting with.

The system didn’t fail completely, but struggled with these phases:

* What was wrong — it took her doctors nine months to correctly identify an illness which had classic symptoms
* Who should treat her — there was no easy way to figure out who were the best local physicians and caregivers, which ones were covered by her insurance, and how we could get them to agree to treat her
* Once she was treated, she had a chronic illness, and needed ongoing care and coordinated nursing and monitoring, particularly once her illness recurred

The Workers Compensation system is severely broken. I don’t know how many times I’ve said this, thought this, or blogged about it.

With properly managed information resources things should get better for the patients, and easier for the Doctors to use. The Insurance company, SCIF, likes to “loose” important documents throughout the course of my 5+ year long case. They like to delay things by months.

The rules of communications too are antiquated.
Some of the reports, requests, and other pages in my medical file are of such poor quality it’s next to impossible to read them, and I cannot even request clean copies from the sources themselves.

I should be able to communicate and receive information from my Doctors, and be able to provide them with feedback, and corrected information.

I want treatment for my chronic illness, and pain. Being forced to live in another state where no one is willing to treat me is outrageous. SCIF is all to happy to send you to their Doctors, where suddenly nothing is wrong with you, and your not allowed to view medical reports about yourself. Reports, that I have fought to see, contained information stating needs for further medical treatment, which go unseen. You have to fight every battle to get something accomplished. This has just become detrimental to my mental health.

Open your fucking eyes.

Well on the positive side of things, Google is dreaming up ideas to help patients.
Hey Google, how about you help me organize, catalog, and document my medical file? It’s sitting across the room in boxes. I’d like to be able to search and find information contained in it easily. The insurance company has document imaging capabilities like this, and they still manage to loose my documents.

why shouldn’t I have the same resources they have? I am just a peon compared to their large stature.

I am representing myself with the help of my father, who is not a lawyer. Shouldn’t there be a level playing field?

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2 Comments

  1. Posted 2006.12.01 at 5:43 pm PST | Permalink
    i am VERY sad to hear about your situation! And although there is nothing that I can do to assist with your clinical nor provider challenges, I felt compelled to at least offer the free use of a medical bill management tool… it’s not much as far as comfort but i hope that as you sear through those missing 5yrs of chronic condition paperwork - at least this tool will help to organize some of that crap.

    My thoughts and prayers are with you. Just sign up at http://www.medbillmanager.com and i will activate your status as a private alpha user. If you have any problems, feel free to ping me via email and i’ll help as best as i can.

    with best intentions,

    christopher

  2. Posted 2006.12.01 at 6:34 pm PST | Permalink
    Thank you for your offer, I signed up just a few moments ago.

    Although I was really hoping for something to help with all the medical reports and such.

    Hopefully this can help me with the billing paperwork that I have accumulated in the process of having to acquire my own care and treatment.

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